Post Discharge

Today marks 2 weeks since I was discharged from the hospital (the second time). I was hospitalized 21 days out of the month of January. That. Is. Crazy.

Since my discharge, Brandon was discharged 2 days later on high dose steroids and we’re both rocking the low-residue healing diet. We’ve been joking that we’re a match made in heaven! How funny is that?! But on a serious note, I gained a whole new appreciation for what Brandon has been through. This is no walk in the park. And I will heal and most likely never deal with this again. Brandon has to face a lifetime of this. Oh, I hurt for him just knowing that pain like that lies ahead of him potentially.

“What’s the plan?”, you ask… Well, the plan for me is to heal – rest, low-residue diet for a few weeks, no heavy lifting, no working out for 3 months, and no running, ever. In a few weeks I will be off all medication and slowly incorporating more “regular” foods (read- VEGGIES!!!) back into my diet, and hopefully back to work soon. I’ve watched my fair share of Netflix and I’m ready to get back to normal… Now, when I’m pulling my hair out in a few months because we’re crazy busy like “normal”, just remind me that I was tired of watching tv and that I wanted this.

The plan for Brandon is to continue his steroid taper (which is working to open up the partial intestinal blockage that landed him in the hospital) in hopes that we can get the inflammation down to the point that the Remicade can work. And the Remicade dosage will be increased at his next infusion. We have 2 options available to us: increase the dosage, or increase the frequency at which the infusions occur. Our doctor has put us on the track to increase his dosage first and we will see how that plays out. I’m still hopeful that the Remicade will work, and that we can get this nasty Crohn’s under control. In case you’re just joining us on this journey, Brandon has a very aggressive form of stricturing Crohn’s. When the Crohn’s is active, that’s when the scar tissue forms. We need to pray that we can get the active Crohn’s to settle down and go into remission. Remission can last for years and that is my prayer. That we can live in remission and free from worry.

Forgive my lack of posts the last two weeks. It’s not like I haven’t had the time… I’ve had plenty of time, but I’ve been in a bit of a haze from the pain medication still and have been doing a lot of reflecting. I’ve got another post in the works but I don’t want to overdo it on this one.

For now, though, I have found myself so incredibly grateful and embracing just how blessed we are. You might be wondering how I can feel this way, when I just spent 3 weeks in the hospital and with Brandon’s health history, but let me put it in perspective… things could be so much worse. Sure, we started out 2016 with 2 hospitalizations, but neither of us has cancer, and both of our children are healthy! I could be writing post after post about how one of my sons is sick, or how one of us has a terminal illness… but I’m not. I’m writing about little storms in the Delk’s lives and how each of you has helped us weather them.

This past Sunday at church, our pastor showed a video, an NFL football Sunday video. I cried through the entire thing. You might find that odd, considering it was a video of NFL football players for Super Bowl Sunday, but I found myself relating immediately to Thomas Davis, linebacker for the Carolina Panthers, and the tears just wouldn’t stop. Call me crazy, but I felt like the video was just for me, on my first Sunday back at church, and I felt God clearly speaking to me.

I am so blessed and I feel like I’m bursting at the seams to tell everyone. If you’ve got 25 minutes to watch the video, you won’t regret it, but if you can only spare a few minutes, listen to Thomas Davis’ story (minutes 1-5) and Trent Dilfer’s story (minutes 15-21), just keep the tissues handy. I’d love to hear your reactions to the video.

I have a big ole gratefulness post but I’ll save that for later since this one is already long enough. Thanks for praying for us during this time, friends. We value each of you and I’ve said it before, but I’ll say it again, we’re convinced we have the best family and friends in the world.

 

3 thoughts on “Post Discharge

  1. We have all been praying for you both and your family! You are such a beautiful testimony of faith in action! Gods blessings of health on you both and many blessings in 2016 for you all! Continuing prayers! God’s got you!! Much love- from Sue and Emily Myers- prayers from Pennsylvania to North Carolina are being sent your way!!!!

  2. Hi there. My best friend Brooke Stegenga told me about your blog because I am also battling a very aggressive form of Crohn’s. I was diagnosed in July 2013, 4 days before my 22nd birthday. I’m glad to hear y’all have been discharged from the hospital. There’s no place like home! Even if being home still requires bedrest. As sorry as I am that your husband has to deal with Crohn’s, it’s nice to know that someone else out there truly knows the pain and understands what it is like.

Leave a Reply

Your email address will not be published. Required fields are marked *